Som annonceret d. 21. august her, er der i perioden 11.-13. februar 2010 den allerførste verdenskonference om systemisk sklerodermi i Firenze.
Patientprogrammet er som følger - her på engelsk.
Du kan også hente programmet i pdf HER.
Thursday 11 February
12.00 – 18.00 Registration
13.30 – 18.00 Congress for the doctors. This begins with a lecture by Professor Dame Carol Black on « Scleroderma : History and Prospects ». All registered patients are welcome to attend.
18.00 – 19.00 Official Congress Inauguration at the Palazzo Vecchio. Opening Ceremonies will feature talks by President of EULAR Dr. P. Emery, President of FESCA Ann Tyrrell Kennedy, and FESCA patient representative Annelise Roennow on « What it Means to have Scleroderma ».
19.00 – 20.00 Welcome Cocktails in Palazzo Vecchio. All registered patients are welcome.
20.00 Adjourn
Friday 12 February
09.00 FESCA team arrives at desks, to guide patients to talks.
Once registered, patients may move between rooms A&B at will.
Patients may attend medical sessions.
09.00 - 10.00 REGISTRATION OF PATIENTS. BADGES GIVEN
10.00 CONFERENCE BEGINS WITH WELCOME IN ROOM A FOR BOTH GROUPS
Saturday 13 February
For FESCA representatives :
10.00 – 12.00 2010 FESCA Annual Assembly (FESCA representatives only)
12.00 – 13.00 Lunch (served in FESCA meeting room)
13.00 – 15.00 Continuation of Annual Assembly (FESCA representatives only)
For all patient organisation leaders from all countries attending congress:
15.00 – 16.00 Presentation by Scleroderma Society of Canada, with data from a recent patient survey. Speaker: Maureen Sauvé. Open discussion regarding collaboration by groups around the world.
For patient delegates:
11.00-13.00 Sightseeing walking tour of old Florence
GALA DINNER
20.00 Official Dinner for all attending the World Congress medical and patient programs. Cost of attending dinner €50. All patients, patient organisation members, and medical professionals may attend. Reservations must be made at time of registration with AIM agency.
Klik HER for at hente hele programmet i pdf.
Ønsker du at deltage i verdenskonferencen? Se her, hvordan du tilmelder dig.
Har du spørgsmål kontakt Annelise på annelise@rxnnow.dk eller tlf. 22515772.